We don’t post often anymore.
Not that cancer isn’t a part of weekly thoughts or conversation. It’s just that cancer is not the center of our schedule like is was at the end of 2012, much of 2013 and parts of 2014.
But I posted about the ovary last June. I suppose the ovary is not directly related to her breast-cancer diagnosis from 2012, but Jenny’s body is complicated and definitely compromised since that day. Every decision — from the non-oophorectomy in 2014 to the hysterectomy in late 2016 to the scope in 2018 — is related to the original diagnosis in 2012. It’s been a long road.
She just turned 40, which is at least older than 2014 when she was 35. Her age has been a part of her decision-making all along. And this left ovary that she had remaining became the center of focus in the last couple years. Her goal: “Keep it as long as you can.”
In the post last June, I referenced original goals of keeping the ovaries for as long as possible. I also referenced the fears she had about the potential of finding cancer in the scope. Last June’s surgery was multi-factored.
As Jenny wrote, we are praying for a good outcome in this scope — whatever that means today. There are varying degrees of good outcomes in this case. It means no cancer. It means keeping the ovary. It means finding the source of the pain she’s been dealing with every few months for the last 8 months. Most of all, it means no cancer.
Let’s go back to the that secondary goal of keeping the ovary … That goal came from conversations with Dr. Misty Wayman (OBGYN in OKC), Dr. Stacy Moulder (oncologist at MD Anderson in Houston) and Dr. Aleda Toma (oncologist in OKC).
By my count right now, I count 16 doctors that we’ve dealt with during this journey. So Jenny is always trying to get consensus when she can. She likes to get a variety of opinions.
The decision to not have an oophorectomy in 2013 or 2014 is what led Jenny to Dr. Toma and away from her previous oncologist, who was recommending her ovaries be removed or put to sleep.
Who knows what the best path would have been? Maybe Jenny should have removed it all years ago. But the vast majority of her doctors did not recommend that path at her age. Even last June, keeping the ovary was a goal.
But last Sunday (Feb. 17, 2019), Jenny said it was time to get that ovary out. She meant it. I’d have done it myself if I could have.
She was in the Integris ER in Edmond in serious pain with the dreaded twisted cysts (ovarian torsion). Since those cysts were removed last June, she’s been pretty much pain free. On occasion, there have been a day or two of discomfort, but she’s been able to deal with it.
Not so on Sunday. She was in serious pain — a new record to put in the books as ‘the most pain I’ve ever been in!‘ She wasn’t smiling (like she was today) on Sunday. No smiles at all.
After a week of dealing with it — appointments with her new gynecologist, Dr. Valerie Engelbrecht at Lakeside Women’s Hospital; ultrasounds; blood work and consultations — we cancelled our weekend getaway to see Bob Seger and explore San Diego. Jenny really wanted that west-coast getaway, but she wanted to be pain free and get rid of that left ovary more than she wanted to crawl her way through the airport.
Instead, we rescheduled San Diego (and we’ll plan to see our man Seger in Tulsa in May) and scheduled surgery for today (Friday, Feb. 22).
Jenny hasn’t been able to walk this week — not very far anyway. She worked from home and tried to stay ahead of the pain. We thought it might get better, like it has other times the cysts have been there. It’s gotten a little better, but we agreed that she needed to be much better before we would fly three states away.
I told her that we couldn’t agree to go to San Diego and postpone the surgery a week unless she could complete a star jump Wednesday at noon.
She never executed the star jump. So we didn’t go to San Diego. In retrospect, Jenny declared that she wished she would have had emergency surgery at the Integris ER on Sunday.
Lakeside was a bit different than most of the places Jenny has had surgery. There were just some different procedures regarding when I could see her — both before and after surgery. I didn’t get to see her when they gave her the first dose of ‘relaxation,’ and I didn’t get to see her right after she woke up. It’s OK, though. They were very nice there.
We arrived at 10:30 a.m., on schedule. They called Jenny back. Then Jenny’s parents, Bill and Linda, arrived. We all were able to go back and sit with her as we waited for the doctor to be ready.
At 12:15, she walked back to get that ovary out. By 1:36 p.m., Dr. Engelbrecht came to talk to us. All is good. The ovary was already dead. It wasn’t in good shape. There was ovarian torsion and it was attached to her colon. Not good stuff. Dr. Engelbrecht understood why she was in so much pain.
By 2:05 p.m., we were able to go back to see her. She’s ready to go. A couple shots of pain meds, and we were on our way by 2:40 p.m.
Another surgery. Another success. And we’ll always remember the Bob Seger concert we didn’t attend.
The story of the ovary is finally over.
I hope your recovery is quick and pain free.
❤️🙏🏻
Dang, I didn’t realize Bob Seger was on deck for San Diego. That dang ovary! I am glad surgery went smoothly and praying we are on our final road to recovery. Lots of love.
I am so proud of you both. You are an unbeatable TEAM. I pray you have seen the end of the pain. You deserve a healthy happy healed future.
Thank you for sharing your story. Prayers and hugs!
Xoxo Jen Jen
Glad you are finally feeling better. It’s been a long road.