Update from the surgeon visit

Just a quick update for everyone…

We met with the surgeon this afternoon. There are a few things that we learned:


1) My tumor is highly receptive to estrogen and progesterone. It is HER2 negative. In essence, this is a good thing because they can give treat it easier.

2) The surgeon says based on the fact that it is in multiple places, I need to do a full mastectomy. A double mastectomy is also an option for me should I choose to go that route. Positives are that I am at higher risk to get cancer on the other side, and this would reduce that. Also, symmetry in reconstruction would be better.

3) Bad news is that she says I will have to have radiation (though she is not the one to make that call – we meet with the oncologist on Wednesday for more info on this) because it is so high up and probably on the muscle on my chest wall. While they will remove the tissue, they will not remove the muscle so they will likely want to do radiation to get rid of it there. Getting radiation means that I am not able to get reconstruction at the time of my mastectomy. The radiation reduces the elasticity in the skin which means that a plastic surgeon would have to remove skin from other areas (tummy, underarms) and use that to replace the damaged skin during reconstruction. This means I have to go through chemo and radiation before I can get reconstruction surgery. That was hard to hear.

4) Based on the size of the tumor, I am at least a Stage 2. We will know more about stages when she tests the lymph nodes. Good news is that the MRI didn’t show anything that made her think it had made it there. She also checked me today to see if there was swelling  and all was good.

5) Breast cancer can spread through the lymph system or blood. Either way, the chemo will kill any renegade cancer cells that might have escaped the primary tumor.

For those I have talked to, I gave myself an self-imposed deadline of October 17 for surgery. I pulled this date out of NOWHERE, not even knowing if that was a weekend. This arbitrary deadline helped me focus and begin getting things ready at work and at home. Well, we decided to schedule surgery today just so we can have that booked while we decide on second opinion options. When we sat down with the scheduler, she said that the doctor only did these types of surgeries on Wednesdays. That means we could do October 10 or October 17…

Bizarre coincidence, I’m sure, but as much as I’ve been proclaiming that October 17 is my surgery date…it sure seems like a sign! We went ahead and booked that date.

The doctor said I’d be out of work for about 4 weeks, but this would be based on my stamina not on my pain. She said most people just run out of energy fast.

So, as of right now, I am scheduled for surgery in the early morning on October 17. I don’t know if we will keep this date, but it is good to have something on the books. We have a lot to think about and consider, but unfortunately, my brain shuts down under stress. It is an early bedtime for me tonight, and we will make major decisions tomorrow.

3 thoughts on “Update from the surgeon visit

  1. So glad you’ve got this up. This should save a lot of phone calls and emails as we all worry about you and think about you, baby girl! I LOVE that picture of you guys!

  2. This is definitely a journey. Thank you for allowing me to be of some support to you as you go through! I will be praying for and with you. You’re an amazing woman. Let’s kick some BC butt!!

  3. I am glad to know that things are falling into place. Our granddaughter, Claire, (who was 7 at the time) had her cancer surgery at Texas Children’s, which I do think is affiliated with MD Anderson. She is now 10 and doing splendidly. She asked what color the “tissue” was–of course she was told pink. She grinned and said “I’m so glad, of all the tissues, I like pink best”–I must always remember to pack her gifts in pink tissue. I will eagerly watch for your blog reports and I would like to mention that I think your attitude is wonderful–May I recommend “I Wore Lipstick to My Mastectomy”–I am close enough you could put it into Amazon and the REAL title should come up–I’m pretty bad about titles. Keep us informed Jenny. I will send our daughter Jan’s phone to you mom (rather than publish it here! LOL) She lives in Houston and is Claires mom–she will understand! Nancy

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