Well hello there!
I don’t have a ton to report. We had a great weekend with our friends from Houston. Trey and Melody Wirz get a big shout out for being great hosts and terrific longtime friends.
Well hello there!
I don’t have a ton to report. We had a great weekend with our friends from Houston. Trey and Melody Wirz get a big shout out for being great hosts and terrific longtime friends.
We expected it to be a short day, but it turned into a long one. That’s good.
I started bright and early with a mammogram. I feel like my younger years in gymnastics served me well for this. The tumor is so high up that there were some creative acrobatics involved in getting a clear picture.
(Representation of how my mammogram felt today)
From there, we met with the surgeon. Here are things we learned from her:
1) She thinks I would be fine to get a single mastectomy; however, if a double would ease my mind, that is an option.
2) While I will most likely need radiation, she would like to begin reconstruction during the mastectomy. She will do this by inserting an expander which will allow her to preserve the skin in preparation for the reconstruction. They will fill the expander, and I will have it during chemo. Prior to radiation, they will deflate the expander. They will re-inflate for the six months after radiation while I heal, then we would do reconstruction.
3) We really loved her. I think she might be18 years old, but we really liked her a lot. She seems to be walking into this already planning for reconstruction. Dr. Talbert in OKC was walking in with the anticipation of reconstruction being talked about in a year or more. Maybe Dr. Talbert had intentions of using expanders … but, if she did, she didn’t mention them at all.
4) Dr. Gainer wants to get a plastic surgeon in the room with us before we leave. We are hoping for her to be able to coordinate schedules so that can happen before we leave.
We left her not knowing what would come first, the chemo or the surgery. We needed to see if we had any troublesome lymph nodes before we could decide. That would be seen via ultrasound. The ultrasound that we still couldn’t get into until next Tuesday. Boo.
We had a couple of people trying to get us in for the ultrasound today or Monday – both of them were unsuccessful. However, Dr. Gainer had more pull, I suppose, because she got us in today. That was GREAT news.
So, I headed from Dr. Gainer to our previously scheduled echocardiogram. Dr. Moulder (aka Chloe aka oncologist) wanted to get a picture of my heart because the chemo we will be doing can affect the heart so she wants to be able to monitor that as we go. This was a baseline echocardiogram. It was easy. So easy that I almost fell asleep.
Next up, the infamous ultrasound (*insert mystery music*). The plan was to get the ultrasound done, and if they saw anything suspicious, they would biopsy right then. She took a million pictures during the ultrasound, and I feel like I pretty much bathed in ultrasound goo. At one point, the mostly full bottle actually exploded on me. The doctor came in shortly after the tech was done and looked some more. He apparently saw one semi-suspicious lymph node so they quickly set up for a biopsy. It was pretty easy compared to the other biopsies I’ve had. The needle was much smaller.
My favorite part was that instead of waiting 24 hours (and it is the weekend so make that 72 hours) for results like I had to at Mercy, they were able to take my slides directly to the microscope and test them.
Is the suspense killing you yet? It was killing me.
Negative. Clean. No cancer in the biopsy. This day just got better.
This doesn’t mean I’m in the clear. They will still test them at the time of surgery…but it sure does feel pretty good. While I shouldn’t get my hopes up, the oncologist even mentioned not doing chemo if it hasn’t hit the lymph glands. Not likely, but maybe.
As a side note on the ultrasound: the second area that they were almost unable to find on the ultrasound a few weeks ago was very clearly there this time. It is also easily felt now too. The surgeon said that wasn’t anything to be too worried about … so I won’t worry.
Next steps:
1) Meet once more with Dr. Moulder (oncologist) on Monday. Now that we know we will do surgery first, then chemo, we will finalize our plan.
2) Meet with Dr. Gainer (and hopefully a plastic surgeon) on Tuesday. We will plan for the surgery. At this point, she has not confirmed the plastic surgeon’s availability; however, we are looking at November 12 to be the official day. I will spend one night in the hospital, one night in a local hotel (upon her recommendation), then head home.
So November 12 seems ages away, but at least we have a plan. I’m 95% sure that we will do it all down here … and honestly, the other 5% is held back only because I haven’t really discussed it in length with Alan since we got all of this info.
In the meantime, we are headed to our good friends’ house here in Houston. We will spend some time with them this weekend, watch the Sooners win and maybe we will drink a celebratory adult beverage or two in honor of kicking cancer’s butt.
We have completed Day 1 of MD Anderson. We started with registration, then met with Dr. Moulder, the oncologist. She was very nice and spent a lot of time explaining things to us.
I broke the news to my co-workers a few weeks ago.
(This is not the ‘cancer’ talk. It’s just a photo that we posted on Facebook.)
I was going to be in and out of the office. It was highly likely that I would burst into tears in the first few days (BTW: I’m pretty proud that I actually didn’t have any MAJOR meltdowns!). We are a small company, and this was going to be felt.
I hadn’t even been there for six months.
I’ve had such an amazing mixture of support from everyone there — each in their own way.
But, the common thread is that they have all rallied around to create a team of support. For instance, within minutes (literally ‘minutes,’ as in less than an hour) of me telling them, they were already creating the Koch Comm team page on the Susan G. Komen Race for the Cure.
Did I mention that I have only even known these people for six months?
Then came October 1. Koch Comm turned pink on Facebook.
And, then came these:
My boss and my coworkers are truly more than I deserve.
And this is just a teeny tiny glimpse of the support I have been given.
It is so strange to look back at the last two years of our lives and see so many things that have happened to prepare us for this next year (more on that later).
One of those things was Kym Koch Thompson calling me last March. She is a great leader who always sees the best in people, and her team is reflective of this – a team that has poured out care, concern and support.
Words cannot express how grateful I am to have been invited to join this team.
I’m back! Officially back to the usual routine of work, kids, dinner, kids, etc. To be honest, I missed it. That, and that husband of mine.
I’m officially heading to Houston next Wednesday for my early Thursday morning appointment at MD Anderson. I’m nervous and excited all at once. Excited about a new way of approaching a treatment plan. Excited that everyone has said fantastic things about what this experience will be.
I’m nervous because so far my experience, while limited, has consisted of two things. First, a fairly rude lady to whom I’ve been assigned for getting the appointment scheduled. She isn’t the friendliest I’ve ever met and is not great about returning phone calls. Second, my appointment is set for next Thursday morning, and it isn’t until then that I will know how long I have to stay in Houston. Talk about inconvenient for the type-A planner.
But, back to being excited (since that is a better thing to focus on) … in the Mercy system, I started with the breast surgeon. She is the one who gave me the beginning of the plan with intentions of passing me off to the oncologist afterward. At MD Anderson, the lady told me with the size of my tumor, they will start me off with the medical oncologist who specializes in breast cancer. She will determine the course of action, then I will (so I hear) start a week of tests and visits with other specialists. I’m feeling pretty happy that my second opinion will have a different approach/perspective. If they tell me the same thing Mercy tells me, I’ll feel pretty confident.
My surgery with the doctor here has been rescheduled for October 31. Unfortunately, she only does these surgeries on Wednesdays. I might not be back from Houston on the 24th…and if I push it to November, I’ll feel too much like Kristina in Parenthood (who got diagnosed the same day as me, by the way). So Halloween, it is…assuming I don’t decide to go to MD for my treatment.
On a lighter and more funny note, we had parent/teacher conferences tonight with Ty and Bryn’s teachers. Bryn’s teacher told me that she knew I had cancer because Brynlee came to school and told the entire class that her mom had cancer, but she wasn’t going to die … but she WAS going to lose all of her hair.
Ty’s teacher was grateful for some clarification. A few weeks ago, she assigned a book report to Tyler that was due on October 9. The next day (most likely the day after we told the kids), he came to school and told her that he wasn’t sure he could turn it in because his mom was going to have cancer that day. She asked, “Does she have an appointment or something?” Ty said, “No, she’ll just have cancer on that day so I’m not sure if we can get it done.”
And that, folks, is why you tell the teacher before you tell the kids.
We met a new friend last Sunday.
Judy from our church — Acts 2 United Methodist Church — stopped by to give Jenny a gift. Before Sunday, we did not know Judy. We actually recognized her immediately as someone we often saw at church services (especially before Acts 2 began offering a third service on Sunday — an early one; I don’t think Jenny likes getting going as early as Judy on Sundays).
We recognized her as a friendly face, but we didn’t know her.
But that didn’t stop Judy from going well out of her way to get to know us.
Judy called Jenny and wanted to talk to her about surviving cancer. She didn’t sugar coat anything, but she did make it clear that you can have good times in your life even while undergoing treatment. Judy is a survivor — first leukemia, then breast cancer.
She told the story of how her husband had bought her a stuffed bear as she began treatment years ago. She brought the bear and let us hold it.
It was heavy. That’s what happens when you attach dozens of metal items to a stuffed bear.
Judy told about how her friends and family offered pins, key chains and other assorted items that she could pin, glue, sew or otherwise attach to the bear. As she went through the four years of treatment with leukemia, and then — years later — the year of treatment with breast cancer, she kept the bear with her. The attached items helped remind her of all the people praying for her from all aspects of her life and from all around the world.
So here is the gift Judy gave to Jenny:
It’s not a Teddy Bear. It’s better. It’s a Pillow Pet. (Words cannot describe how excited Brynlee is about this development).
Jenny is excited, as well. She likes the idea and plans on using it just as Judy described.
So she could use your help.
If you would like, we’d love to attach items to our new pillow pet. A pin, key chain or something similar that’s meaningful to you, Jenny or both — or it could just be something that looks nice.
As Judy says, each attached item represents a prayer. We already know there are lots of people praying for Jenny. That feels really good to our entire family.
The visual reminders and the soft pillow pet feel really good, too.
P.S. — if you want to mail it to us, that would accomplish two things. (1) It would successfully deliver the item to us; and (2) it would give me reason to walk to our mailbox and allow me to rethink my plan to cancel my mail, thereby avoiding an interrogation from the postmaster general.
Our address is 908 W. Mid Iron Way; Edmond, OK 73025
(In-person deliveries are welcome, too.)