I’m feeling great. Seriously. Completely normal — aside from the soreness of having a foreign object lodged in my chest (a.k.a. the port). Even that is not too bad.
I really felt 100 percent by Day 7, which was last Thursday. I’m on schedule to go in for chemo at 9 a.m. this Thursday morning.
Today I am seeing a lot of hair loss begin to happen. My scalp was really sore yesterday — like when your ponytail is too tight.
So, I’m on Day 4 post chemo. (or is it Day 5? Do you count the day of?)
While I don’t feel fantastic, this hasn’t been nearly as bad as I expected.
I woke up at the normal time today and went all day without sleeping – quite different from my weekend. I’m pretty sure I was only awake for about 15% of the weekend. Kudos to Alan for being on complete kid duty, including a road trip to Tulsa.
Sorry to not post yesterday. I thought I’d be able to, but I slept instead…A LOT!
Round 1 went pretty well. I was pretty nervous, but it wasn’t bad.
We had a long visit with the pharmacist there about the drugs I would be taking, what they did and what to expect from them. It was nice to hear such good information.
I met with Dr. Razaq this morning.
Oddly, using a measurement tool that she says is very common in the industry, my odds of recurrence and measurement of mortality are identical whether I do a full eight treatments (four Adriamycin/Cytoxan and four Taxol) or if I just do four rounds of Cytoxan and Taxol together. The former is a 4-month plan; the latter is a 3-month plan.
It is very odd.
Well folks, things have happened since I last posted.
First, I’m once again reminded that we are surrounded by some pretty amazing people who have all helped us reach the right people at the OU Stephenson Cancer Center. I’m sure the administration is tired of hearing about my situation at this point – so thanks, friends! You guys are the best.
Words can’t accurately describe how I feel. I’m mad, sad, disappointed…you name it.
I’ve waited very patiently for the last two weeks to hear about my OncoType DX test results. Scratch that. I’ve waited patiently since January 24 for them.
This is a long post so for those of you who know it or don’t want to read that much, just skip down to March 12. That said, I feel like it is important to document this to show just how broken the system is.